Great Resources
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. CaringBridge is powered by generous donors.
Cautious Patient Foundation educates patients about risks they face in the medical system, how their participation in care can be lifesaving, and how to participate for maximum benefit.
Coalition for Pulmonary Fibrosis (CPF) supports patients and caregivers through every step of their experience with Pulmonary Fibrosis, a terminal lung disease with no known cure. CPF shares resources and information with patients and doctors, and works to protect the rights of patients. The Coalition also advocates for patients, funds research for treatments, builds public awareness, and lobbies for increased federal research funding.
Institute for Patient- and Family-Centered Care is a leading non-profit dedicated to advancing patient- and family-centered care practices in hospitals and other health care settings. IPFCC’s website serves health care organizations, and patients and families with free online collaboration tools, information about educational meetings, webinars, top training seminars and world conferences. The site links to a host of organizations promoting quality and safety, and is a portal for consultation and technical support to advance patient- and family-centered care.
The James’s Project is on a mission to reduce infant mortality and improve maternal health by focusing on patient safety issues before, during and after medical treatment. James’s Project supports patient safety for infants, among the most vulnerable in hospitals, with education, communication, and collaboration. Creating effective communication strategies and opportunities in healthcare is critical to improving patient outcomes for all, but especially for those who are too young to speak for themselves. James’s Project is also dedicated to safeguarding the physical, emotional, and familial growth during the first year of life.
Juvenile Diabetes Research Foundation of Illinois (JDRF) is the worldwide leader for research to cure type 1 diabetes. The mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is an autoimmune disease that strikes children and adults suddenly, and can be fatal. Until a cure is found, people with type 1 diabetes have to test their blood sugar and give themselves insulin injections multiple times or use a pump–each day, every day of their lives.
Since its founding in 1970 by parents of children with type 1 diabetes, JDRF has awarded more than $1.5 billion to diabetes research, including $107 million last year. More than 80 percent of JDRF’s expenditures directly support research and research-related education. For more information on how you can get involved and how JDRF can help you or your loved one with type 1 diabetes, please visit www.jdrfillinois.org.
Why Checklists for Families?
Every patient needs a family member or friend with them in the hospital -- yet few of us are prepared for this important role.
Our simple little checklists can be a big help.
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